Director of the Centre for Health, Law and Emerging Technologies (HeLEX) at the University of Oxford, Professor Jane Kaye, will give a seminar on 23 November at 1pm, entitled "Patient engagement and protecting privacy in a digital world". The seminar and Prof Kaye's visit to Melbourne is being jointly hosted by Melbourne Genomics Health Alliance and the Melbourne Law School.
Within the health sector, the use of big data approaches, whole genome sequencing and cloud storage facilities has the potential to accelerate our knowledge of disease and radically transform healthcare delivery. However, the use of these technologies raises questions about how the law can protect the privacy of individuals and vulnerable groups in society while advancing the public good. The Dynamic Consent IT interface provides patients with a way to protect their privacy interests in conformity with legal requirements but also to engage and communicate with health professionals.
Professor Jane Kaye is the Director of the Centre for Health, Law and Emerging Technologies (HeLEX) in the Nuffield Department of Population Health at the University of Oxford. She is on a number of international expert committees and scientific advisory boards. She was on the Nuffield Council Bioethics Working Group on Biodata 2015 and Rapporteur for the EC Expert Report, Biobanks for Europe - The Challenges for Governance June 2012. She is on the editorial boards of Law, Innovation and Technology, the Journal of Law and Information Science and Life Sciences, Society and Policy. Professor Kaye is a graduate of the Australian National University (BA), University of Melbourne (LLB) and University of Oxford (DPhil). Her team are leading on the Dynamic Consent project and she is one of the leaders in the ELSI 2.0 Global Initiative.